EXPERIENCES OF PARENTS ON CLINICAL CARE AND MANAGEMENT OF CHILDREN WITH HIV IN CHINGOLA, ZAMBIA

Authors

  • Lukika Susan Mututubanya-Basila Research Scholar, Institute of Distance Education, University of Zambia, Zambia
  • Joseph Mandyata Research Supervisor, Dr., University of Zambia, Zambia
  • Kalisto Kalimaposo Research Supervisor, Dr., University of Zambia, Zambia

DOI:

https://doi.org/10.46827/ejes.v12i2.5824

Keywords:

parenting, clinical experiences, HIV, ART, care and management

Abstract

Raising a child is a challenging experience, more so for a child living with HIV. The nature of the condition of a child goes with its complexities, including those which, from time to time, require clinical care and management. The complexities often put parents to the test of how to care for and manage such children. The study explored the experiences of parents of children with HIV as they clinically care for and manage the children in Chingola, Zambia. An interpretive phenomenological framework supported by qualitative approaches was used in the study. The parent participants were selected using a non-probability, homogeneous sampling purposive procedure. The sample was 10 parents of children with HIV drawn from various geographical locations in the study district. Qualitative data was collected using in-depth interviews and was analysed using a thematic analyses approach. The study revealed that parents were central in securing clinical services for their children. These involved HIV testing, access to ART clinic Support, observing hospital appointments, and receiving medical, education and training support on care for their children. As a result, parents found themselves dealing with child’s constant sicknesses and regularly soliciting medical support for the children. It was also found that parents faced challenges arising from initial reactions to the child’s condition, centering on failure to accept the child’s condition, feeling emotionally burdened and increasing desire to get the child get treatment. Additionally, the study revealed that parents were using various coping strategies in dealing with experiences, these involved collaboration with stakeholders like other parents, medical staff and counsellors. These provided clinical, moral and emotional support to parents as they cared for and managed their children on clinical-related issues. as well as regularly receiving education on how to care for children with HIV. Further, parents were working with faith-based groups in areas transporting the child to the hospital, meeting the cost of supplementary medication and receiving regular moral and emotional support, especially when children were hospitalized. However, it was evident from the study that parents required more support when dealing with hospital cases of their children from families, medical personnel and well-wishers, especially in meeting transportation costs, counselling, and supplementary feeding during hospitalization. The study recommends individual, family and group support in various aspects of clinical care of children, including counselling to minimize negative clinical, emotional and psychological challenges encountered as they deal with clinical issues surrounding their children.

 

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Author Biographies

  • Lukika Susan Mututubanya-Basila, Research Scholar, Institute of Distance Education, University of Zambia, Zambia

    Lukika Susan Mututubanya-Basila is a PhD candidate in counselling at the University of Zambia. She is also a minister of the Word and Sacraments in the United Church of Zambia. She holds a Master of Science in Counselling degree from the University of Zambia, a Bachelor of Theology degree from the University of Western Cape in South Africa and UCZ University. She also has a Diploma in Teaching Methodology from UCZ University and an Advanced Certificate in Information Technology from Copperbelt University. Her research interests include HIV/AIDS counselling, especially for victims of abuse and HIV/AIDS-related issues.

  • Joseph Mandyata, Research Supervisor, Dr., University of Zambia, Zambia

    Dr. Joseph Mandyata is a lecturer, researcher and consultant in the Department of Educational Psychology, Sociology and Special Education, School of Education, University of Zambia. He holds a PhD in Special Education, a Master of Education in Special Education and a Bachelor of Arts with Education Degree from the University of Zambia. He has researched, presented papers, and published articles in the areas of special education, inclusive education, guidance and counselling, and early childhood education at local and international levels. His research interests are in educational administration and management, policies on special/ inclusive education, partnerships in education, guidance and counselling, disability, education and poverty and early-grade reading education.

  • Kalisto Kalimaposo, Research Supervisor, Dr., University of Zambia, Zambia

    Dr. Kalisto Kalimaposo is a Senior Lecturer and researcher at the University of Zambia, School of Education, Department of Educational Psychology, Sociology and Special Education. He holds a PhD in Sociology of Education degree, a Master’s degree in Sociology of Education and a Bachelor’s degree in Sociology and Library & Information Studies from the University of Zambia. He has published and presented papers on a wide range of educational issues in local and international journals. His research interests include equity studies in education, curriculum innovation, teacher education, sociology of disability, transformative learning, comparative and development education, primary education and entrepreneurial education.

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Published

2025-02-20

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