LIVED EXPERIENCES OF CLINICALLY DIAGNOSED YOUNG ADULT WOMEN WITH POLYCYSTIC OVARY SYNDROME
DOI:
https://doi.org/10.46827/ejphs.v8i2.219Keywords:
polycystic ovary syndrome, young adult women, emotional impact, fertility concerns, medication experience, coping mechanismsAbstract
Polycystic Ovary Syndrome (PCOS) is a complex hormonal disorder that affects many young adult women, often altering not just physical health but also emotional and social well-being. While clinical literature typically emphasizes its physiological symptoms, the lived experiences of those diagnosed with PCOS offer deeper insight into how this condition reshapes everyday life. This qualitative study explored the experiences of eight young adult women clinically diagnosed with PCOS, aiming to uncover how they coped with and adapted to its emotional, physical, and social dimensions. Through in-depth interviews and thematic analysis, four key themes emerged. First, participants described the emotional toll of PCOS, expressing how changes in their physical appearance—such as weight gain and acne—damaged their self-esteem, triggered social anxiety, and led to academic disengagement. Despite these difficulties, some gradually embraced self-acceptance by reframing their worth beyond societal beauty standards and drawing strength from supportive environments. Second, experiences with medication reflected a complex mix of hope and frustration. While some noted improvements like regulated menstruation, others discontinued treatment due to side effects, emotional instability, and the financial burden of sustaining long-term medication. Third, fertility and family planning surfaced as deeply personal concerns. For some, PCOS raised fears about infertility and disrupted visions of motherhood, while others redefined or detached from traditional reproductive expectations, affirming choices not to bear children. Finally, coping mechanisms and lifestyle strategies, including exercise, dietary changes, and self-motivation, emerged as essential tools for regaining a sense of control. Participants also highlighted the value of self-education and family medical awareness, especially when genetic predisposition was evident. These elements reinforced informed decision-making and early consultation. Ultimately, living with PCOS is not just a medical condition—it is a layered experience shaped by emotional resilience, shifting identities, daily struggles, and proactive adaptation. These narratives call for more empathetic, holistic healthcare that acknowledges the full scope of what it means to live with PCOS.References
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