BURDEN AND DEPRESSIVE SYMPTOMS IN CAREGIVERS OF PATIENTS WITH DEMENTIA
DOI:
https://doi.org/10.46827/ejphs.v8i4.233Keywords:
caregiver burden, depression, dementia, mental health, family caregiversAbstract
Background: Caring for a person with dementia entails considerable emotional, physical, and social demands that can adversely affect caregivers’ mental health. Research consistently shows that caregiver burden is closely linked to depressive symptomatology, particularly in family members who provide long-term, intensive care. Aim: This study aimed to examine the levels of burden and depressive symptoms among caregivers of patients with dementia and to explore whether sociodemographic factors (gender, age, and relationship to the patient) influence the degree of caregiver burden. Methods: A cross-sectional quantitative study was conducted with 140 caregivers of individuals diagnosed with dementia. Participants completed a demographic questionnaire, the Beck Depression Inventory (BDI), and the Zarit Burden Interview (ZBI). Data analysis included descriptive statistics, Pearson correlation, independent samples t-test, and one-way ANOVA, following APA reporting standards. Results: The findings indicated mild depressive symptoms (M = 18.54, SD = 12.58) and moderate levels of caregiver burden (M = 39.75, SD = 19.44). A significant positive correlation was found between depression and burden (r = .282, p< .001), suggesting that higher burden was associated with greater depressive symptomatology. No significant differences in burden were observed by gender (t(138) = −0.003, p = .998), age (F(F (3,136) = 0.853, p = .467), or relationship to the patient (F(7,132) = 0.666, p = .701). Conclusion: The study highlights the emotional toll of dementia caregiving, underscoring the importance of psychosocial support programs aimed at preventing depression and alleviating caregiver burden. Routine screening for emotional distress and early interventions is essential to promote caregivers’ mental health and resilience.
References
Beck, A. T., Steer, R. A., & Brown, G. K. (1996). Manual for the Beck Depression Inventory–II. San Antonio, TX: Psychological Corporation. Retrieved from https://www.scienceopen.com/document?vid=9feb932d-1f91-4ff9-9d27-da3bda716129
Borsje, P., Hout, H. P., Rijmen, F., Bor, H., Buurman, B., & Hertogh, C. M. (2016). The course of neuropsychiatric symptoms in community-dwelling patients with dementia and the relationship with caregiver distress. International Journal of Geriatric Psychiatry, 31(12), 1293–1301. https://doi.org/10.1002/gps.4436
Brodaty, H., & Donkin, M. (2021). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 23(1), 1–12. https://doi.org/10.31887/DCNS.2021.23.1/hbrodaty
Cheng, S. T. (2017). Dementia caregiver burden: A research update and critical analysis. Current Psychiatry Reports, 19(9), 64. https://doi.org/10.1007/s11920-017-0818-2
Chiao, C. Y., Wu, H. S., & Hsiao, C. Y. (2015). Caregiver burden for informal caregivers of patients with dementia: A systematic review. International Nursing Review, 62(3), 340–350. https://doi.org/10.1111/inr.12194
Edelman, P., Kuhn, D., & Fulton, B. R. (2020). The impact of online interventions on dementia caregivers: Systematic review. Journal of Alzheimer’s Disease, 76(1), 45–60. https://doi.org/10.3233/JAD-200347
Georgiou Eleni-Zacharoula et al. (2025). Depressive Symptoms and Cognitive Impairment in Older Users of Community Home Care Services in Low-Resource Settings: A Real-World Clinical Study [Geo-CoDe Study] Applied Sciences 15 (12), 6426
Karlikava, N., Ucar, H., & Yildirim, M. (2004). The burden of caregiving in dementia: A Turkish study. Clinical Gerontology, 27(4), 25–39.
Kim, H., Chang, M., Rose, K., & Kim, S. (2020). Predictors of caregiver burden in caregivers of individuals with dementia. Clinical Gerontologist, 43(5), 486–497. https://doi.org/10.1080/07317115.2019.1682182
Krsikova, K., & Zelenikova, R. (2018). The relationship between caregiver burden and depression among caregivers of people with dementia. Central European Journal of Nursing and Midwifery, 9(3), 870–877. https://doi.org/10.15452/CEJNM.2018.09.0015
Lwi, S. J., Ford, B. Q., Casey, J. J., Miller, B. L., & Levenson, R. W. (2017). Poor caregiver mental health predicts mortality of patients with neurodegenerative disease. Proceedings of the National Academy of Sciences, 114(28), 7319–7324. https://doi.org/10.1073/pnas.1701597114
Mahoney, R., Regan, C., Katona, C., & Livingston, G. (2020). Anxiety and depression in family caregivers of people with Alzheimer disease: The LASER-AD study. American Journal of Geriatric Psychiatry, 28(8), 880–889. https://doi.org/10.1016/j.jagp.2020.03.010
Mougias, A., Papastavrou, E., & Sourtzi, P. (2015). Burden and coping in caregivers of patients with dementia: A Greek study. Hellenic Journal of Nursing Science, 8(3), 45–54.
Mousavi, S., Shakeri, J., & Mokhber, N. (2022). Gender differences in the burden of care and depression among caregivers of patients with dementia. BMC Psychiatry, 22, 480. https://doi.org/10.1186/s12888-022-04073-5
Papastavrou, E., Kalokerinou, A., Papacostas, S. S., Tsangari, H., & Sourtzi, P. (2021). Caring for a relative with dementia: Family caregiver burden. Journal of Advanced Nursing, 77(9), 3847–3857. https://doi.org/10.1111/jan.14891
Papastavrou, E., Kalokerinou, A., Papacostas, S. S., Tsangari, H., & Sourtzi, P. (2021). Caring for a relative with dementia: Family caregiver burden. Journal of Advanced Nursing, 77(9), 3847–3857. https://doi.org/10.1111/jan.14891
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
Shao, J., Zhang, Q., & Wang, H. (2021). Depression and its association with caregiver burden among family caregivers of patients with dementia: A meta-analysis. Journal of Psychiatric Research, 140, 240–248. https://doi.org/10.1016/j.jpsychires.2021.05.007
Svendsboe, E., Terum, T., Testad, I., Aarsland, D., Ulstein, I., & Corbett, A. (2016). Caregiver burden in family carers of people with dementia: Associations with quality of life, depression and anxiety. Aging & Mental Health, 20(11), 1111–1120. https://doi.org/10.1080/13607863.2015.1078282
Van Mierlo, L., Meiland, F., Droes, R. M., & Vernooij-Dassen, M. (2012). Implementation of psychosocial interventions for caregivers in Europe. International Psychogeriatrics, 24(6), 923–933. https://doi.org/10.1017/S1041610211002418
Vassiliadis, P., & Papageorgiou, S. (2020). Caregiver burden and psychological distress among family caregivers of dementia patients in Greece. Psychiatriki, 31(2), 132–140.
Whitebird, R. R., Kreitzer, M. J., Lewis, B. A., Hanson, L. R., & Crain, A. L. (2013). Mindfulness-based stress reduction for family caregivers: A randomized controlled trial. The Gerontologist, 53(4), 676–686. https://doi.org/10.1093/geront/gns126
Zacharopoulou, E., Papathanasiou, I. V., & Kourkouta, L. (2015). Gender differences in caregiver burden among dementia family caregivers. International Journal of Caring Sciences, 8(3), 618–627.
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. https://doi.org/10.1093/geront/20.6.649
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